So today we took Erynn to Tucson to meet with the a Pediatric Nephrologist, Dr. Apostle. He was very nice and explained Erynn's Kidney Reflux to us. He also said that there is a 80-90% chance that her right kidney will grow out of it on it's own and a 50-75% that the left will by the age of 5. It looks like we have a few years of watching Erynn closely for any sign of infection. We are just so happy to hear that there is a chance.
We already made our 1 yr follow-up appointment with Dr. Apostle (he is already scheduling 4 months out) and have to follow-up with the nephrologist here in Safford. He suggested Dr. Killion or Dr. McDonald. He said that if for any reason Erynn has to have surgery, it would be a good idea to already be working with these Dr.s because they would be the one performing the procedure. It will be nice to follow-up with Specialists here in town and not having to drag Erynn to Tucson every six months.
She was such a trooper. She did such a good job letting him examine her. She was kicking and smiling at everyone. She couldn't have been happier. I am praying that she just learns that this will be a part of her life for awhile and get used to the prodding. The Dr. also informed us that when we have other children, that there is a chance they may have similar problems. We think that it is so crazy to think that Andie and Avery are totally healthy, yet here is little Erynn with kidney issues.
We were told that because of her first infection, she may already have some kidney damage, but that it is too early to know that for sure. He suggested a kidney scan at 1 yr, after everything has healed and she was a little older to see if there was any damage. That makes me really sad. He also told us about the signs to watch for in case of an infection. He said that as she grows older she might have issues voiding or that it might be painful. He said to watch for signs of fussiness when she voided or that she might not void because of the pain. I had this really sad vision of my little Erynn not wanting to pee because it hurt or having accidents because she was afraid to pee. I think that potty training will be interesting. I can only hope and pray Lucas and I do all that we can to keep her healthy and infection free.
For now we are just amazed at how sweet she is and how fast she is growing. Last week I posted that she was 23 3/4 in tall, well this week she grew another in and is now 24 1/4 in tall. I tell Lucas all the time that I wish I could freeze time and enjoy each day a little more.
I've been jogging in the mornings and find myself just so grateful for my wonderful family. It is amazing what a little time alone and fresh air can do for the mind and body.
Tuesday, April 28, 2009
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